Georgia's Prime Minister Addresses Parents of Children with Achondroplasia, Calls for Cooperation in Accessing Treatment

Economics 1682672902    12

პოლიტიკოსები

Georgia's Prime Minister Irakli Gharibashvili has addressed the parents of children suffering from achondroplasia, a genetic disorder that affects bone growth, and called on the state to finance medicine for the treatment of the disease. Speaking before a government meeting, Gharibashvili assured the parents that the government had not refused to finance the medicine but would do so only when the results and recommendations of the fourth stage of drug testing by the World Health Organization become known.
The Prime Minister acknowledged the emotionality and nervousness of parents, but emphasized the need to wait for the conclusion of the fourth phase of drug testing and the guidelines of the World Health Organization. He also urged parents to understand that the state would be responsible if the children's health condition worsened after being given the medicine.

Gharibashvili stated that the government could talk about financing the medicine up to 10 million GEL and that a little effort was needed from both sides to work together towards a solution. He appealed to the parents to wait for a few more months until the drug testing is complete and the guidelines are issued.

The parents of children with achondroplasia have been holding a protest march in front of the Government Chancellery, demanding that the state allocate money from the budget to bring the medicine into the country. Unofficially, 36 teenagers in Georgia have been diagnosed with the disease, and 15 of them are under the age of 15.

The Prime Minister's message offers hope to parents who have been struggling to access the medicine for their children due to its high cost. It also demonstrates the government's willingness to work with the families affected by the disease and provide them with the necessary support.    

Terms of use of the material
Other news
ენმ
UNM political council expanded by 20 members

United National Movement political council was expanded by 20 members. Chairman of the National Movement, Levan Khabeishvili, announced this after the end of the session of the political council. The...

Politics 1701265779

კობახიძე
Irakli Kobakhidze: After 8 lost elections, they will definitely lose the 9th, 10th and 11th elections as well - National Movement is in a difficult situation, they are in a big mess

It is a serious situation. National Movement is in a big mess, the chairman of Georgian Dream Irakli Kobakhidze told journalists. According to him, after 8 lost elections since 2012, the collective Na...

Politics 1701265672

ლოგო
The session of the political council of UNM ongoing in the party office

The session of the political council of the party is taking place in the central office of the United National Movement. As the chairman of the party Levan Khabeishvili said at the briefing, he will p...

Politics 1701265597

მიხეილ სააკაშვილი
Mikheil Saakashvili: Russians have the same signature everywhere

Several high-ranking officials of the military intelligence of Ukraine and the wife of the intelligence chief were poisoned with the same heavy metals that I was poisoned with in Rustavi prison in Mar...

Politics 1701265551

ღვინო
IWSC 2024: Georgia to Host Prestigious International Wine Competition

Georgia is set to host the esteemed IWSC Wine Judging competition for the second time, with an impressive lineup of 520 wines from over 170 companies registered for the event. This year's participatio...

Economics 1701078769

კაბუ.jpg
Actor Kakha Abuashvili detained for alleged violence against woman

Actor and rapper Kakha Abuashvili (Kabu) has been arrested by law enforcement officers for alleged violence against a woman. According to reports, the singer was detained yesterday and is currently in...

Justice 1701078588